The Angry Type 2 Diabetic: judgment
Showing posts with label judgment. Show all posts
Showing posts with label judgment. Show all posts

Friday, April 26, 2013

Temptation Wears a Red Dress Pin

Many of you might know that, currently, I work as a cashier for a local restaurant. It can sometimes be a fast paced job, with unique 'diabetes adventures,' as well as unique opportunities to meet people. Sometimes, it's just an opportunity to see people react weirdly to their environments.

Our restaurant isn't exactly a health venue. It's a local fast food type joint, which has at least, some merits: it's privately owned, it makes all of it's food fresh-from-scratch, and since it's family owned, the people are wonderful to work with. For the most part. Every job has it's ups and downs.

I admit I've never been what you would call -- a people person. But I can be a congenial person, and I do love watching people; studying them in their environments, when they think I'm not watching them. Especially as a cashier. Cashiers are like wallpaper to a customer.

One thing which has come as a sort of surprise to me is that most of the people who eat at our restaurant are pretty thin. They'll order the largest thing in the whole joint, deep fat fried, and a trash-can sized cup of soda. Some come and eat this EVERY DAY. Always looking the same weight. Lucky bastards. Then there's the heavy women. They're always ordering salads. A salad, and a cup for water... or a salad, and a diet Coke. And they always look heavy. They never seem to lose weight.

Of course, I don't live with these people -- I don't know what they do or eat when they're not at our restaurant. Who knows if the thin people go running every day, or if the heavier people go eat their entire refrigerators, later. I don't know. But it's a very interesting thing to watch. It makes me feel curious about all the accusations people always have for the obese, like they live, and breathe, fast food... and the level of self awareness some of them must have when they dine out.

And speaking of self awareness... a very curious thing happened to me last Monday. This slender, tall, vivacious looking woman approaches the register, and I happily greet her. She makes eye contact with me, and suddenly, starts freaking out: "Please don't judge me for what I'm about to order because I'm wearing a red dress pin, and I'm about to order really unhealthy food." Quite frankly, I hadn't even noticed the red pin. I was simply more intent on getting her order, and getting it right. I tried to reassure her "Oh, don't worry, it's okay." She looks at me, half smiles, and places her order: two fried items, with a side of fried tater tots, and soda. Then she says "You know, we're allowed to have a treat once in a while." Again, I offer the supportive reply, "Of course. I completely understand." Then she looks flustered, and says "You know what, I'm just going to take it off," as if it were an electronic ankle bracelet, from her local parole officer.

So many responses ran through my mind... like "Lady, I don't give two shits about your damn red dress pin." Obviously, I couldn't have used that one. I smiled warmly, and just offered a light-hearted "Oh, don't you worry yourself about it!," and with a side wink, an "I won't tell."

I also thought... Should I have told her "Hey, I have diabetes. I understand?" I didn't do so... I try not to tell people too much about my private life -- mostly, because I can tell people like that wallpaper feeling when they get their food. (I admit, I don't care too much for knowing people's personal stories when they're just selling me something.) I also thought to myself, "What if she judges me the way she thought I was judging her?" She might think to herself "Of course she has diabetes... look at where she works!" or "look at how heavy she is!" or some other lame conclusion -- as people often love to believe about us people with type 2 diabetes.

But I have to admit, I was quite surprised at her. She felt guilty, from the pin, and it made her aware of her behavior. It was giving her an accountability -- which was only in her mind, really -- but which was a reminder to herself of how she wasn't taking care of herself.

That this woman was embarrassed because of a disease she didn't even have, and of choices she knew were poor, was quite the irony... She may have the option of removing her red dress pin, and ending the stigma, but people who are obese can't easily remove their weight, and put it away, like some sort of suit, and weird fashion statement. We can't easily shut down the stigma, and judgment, others might give us for our condition -- nor can we cure our diabetes with a green salad and a diet Coke. And I sure as heck wish I could 'put my diabetes away,' like some kind of pin, for when I wanted to eat junk... as I'm sure many women with heart disease might wish they could do the same.

And I thought... well, maybe I ought to get a diabetes pin. A pin which always reminds me that I must care for myself. That my health is important... a pin which might make people ask me what it is, perhaps. Blue Fridays is just something meaningless at my workplace, because all my shirts are blue. :-) No one would think to ask, nor could I claim it was 'my choice.' But a blue circle pin, on the other hand... that's a different thing.

A blue circle pin can be awareness, accountability, responsibility, and advocacy. A way to not only remind ourselves of how we matter -- to care for our own bodies -- but to also show others we can do this, and we're not afraid to show it. If I feel bad, on a certain day, I can always take it off.

It's an idea, anyway... Do you feel self conscious in front of strangers when you order junk? Pin, or no pin? Some people always seem to emphasize the diet drink, especially. That's a DIET drink, with the side of fried food. heh We're silly humans, after all.

We're all just so easily embarrassed, I guess.

But perhaps it ought to be a BIG reminder that if we can't handle the imagined stigma of any one disease, even for ONE moment, perhaps we ought to be kind to those who CAN'T easily remove any of their health challenges, like a pin. We need to give others some empathy, some respect, and some space... Especially, when it comes to occasionally letting their hair down, and tasting life.

Wednesday, January 25, 2012

Burnt Out on Judgment: The Not So Simple Motions of Diabetic Living...

This might seem silly... I know. I know I don't have to try hard, or go far, to ask my readers to imagine for a moment being a person with diabetes. (Naw... You don't say!) ☺

But still...! Imagine, for a moment that you're a person living with diabetes, and have lived with it for many, many years... Imagine it's been challenging. You've gone through many phases of burn out, and phases of challenge. It's been a deep struggle, for various reasons:

  1. Managing this crap every day is a roller coaster, and well, it seldom likes to actually do what we expect it to do. Einstein once said that "doing the same thing over and over again and expecting different results" was the definition of insanity. I like to call it... Diabetes.
  2. You have some white coat person always reminding you if you don't take care of yourself, you're going to die. And NOT in uncertain terms, either. 
    1. You'll get retinopathy... 
    2. You'll get nephropathy... 
    3. You'll get neuropathy... 
    4. All the opathies... 
    5. You'll get your limbs amputated... 
    6. You'll lose bladder function... 
    7. You'll be impotent... 
    8. You'll have congestive heart failure, or a stroke...
    9. You'll go into DKA, or insulin shock...  
    10. You'll DIE. 
  3. You may not necessarily have many close friendships, in your immediate circle of acquaintances, that can actually understand you. 
  4. You have some family members constantly reminding you of the things the white coat person was reminding you... 
  5. You have friends, coworkers, and other relatives, wanting you to FORGET about what the white coats, and the other family members, keep reminding you, and then just go live life with them... "just live a little." (And it's always 'living' that's centered around food, or alcohol.)  
  6. You have your own deep desires to want to just be NORMAL, or as close to normal as you can be... and "just live a little."
  7. You've carried the heavy load of discipline, and care, however individualized your load might be, for a long, long time. You are very AWARE of how serious it is if you don't carry the load. 
  8. You get tired...  You burn out. You drop the load.
Now... most of us understand this circle. We understand that it gets OLD carrying the load, and we get burnout. We stop... we go through the motions. Often, we even get eating disorders, etc. 

So we crusade long and hard for our folks, because, we don't want people to think we gave ourselves complications, when they happen. No one consciously says "I'm going to chug donuts! I want retinopathy!" -- Burnout IS a part of chronic illness. It is NOT a character flaw. It is not simply "people not doing their part," or not taking responsibility. It is simply... people being TIRED from taking on so much responsibility. 

By contrast, we may have well been doing 'our part,' and were just genetically predisposed to complications... But the world outside of us does not understand "genetically predisposed." The media doesn't tell ANYONE about "genetically predisposed" -- only about 'you can prevent and avoid complications, if you just take care of yourself.' Why? Because the media is not interested in shades of gray -- the media has a job, and that job is to gain viewership, and ratings. The only way you get viewership, readership, and ratings... is by generating controversy... And the only way you get controversy is by getting folks to think in the inflexible lanes of black and white. And when you scare people about the rising cost of diabetes (uncontrolled diabetes, mind you), and then show them articles about "My aunt Bonnie, who didn't take care of her diabetes, and was irresponsible, etc, etc..." people get MAD. Angry. Unsupportive. Unsympathetic. 

Does that make sense? I'm sure it does. 

Now, imagine a non-diabetic person... living their life as usual. They want to be normal, and keep living, just like anyone else... and as usual. They have the same family members, coworkers, and friends pressuring them to "just live a little." 

They go to their doctor, and hear:  
  • "Meh, you could lose a couple of pounds, but you're fine."
  • "You maaaaaay, or maaaaaaay not get diabetes down the long road... It's just not easy to say. But don't worry about it. You'll be fine. Just walk it off." 
  • "Meh, you're blood sugar is a little high, but you're fine! There's no way you have any issues... Just walk it off..."
  • "Nah, I don't think we need to test anything, you're fine... Just walk it off..." 
Now... If it is hard for us to get our minds wrapped around the realities and burdens of illness, when we HAVE illness... Imagine how hard it is for an illness-free person to get their minds wrapped around the POTENTIALS of illness, and some "boogieman" of illness, out there, somewhere, over the hill... that may come, or not come... but they can't really say for sure... It's just some hazy smoke and mirrors thing. Imagine being "genetically predisposed", but only if you trip! "Don't you ever TRIP!" (Of course, they don't ever mention the trip can also be almost anything, besides weight and diet...) 

Sure, hindsight is 20/20. I'd love to go back in a time machine, and slap the crap out of Liz, and tell her "hey, start carrying the load a little sooner!" (Not that it'd be of much help, with all my other health conditions, medications, and predispositions... They are, together, a much stronger trigger than lifestyle...) Some might say I was damned if I didn't, and damned if I did... But I'm not quite sure what I'd be avoiding, frankly... 

"Live sternly, as a diabetic, so that you don't become a diabetic." 

Seems a bit off putting... It might be hard to convince Liz. Especially if no one's serious about the boogieman... It's never around, and just some foggy illusion thing... And EVERYONE says you can get rid of it, if you do get it... (snark, snark) I mean, yeah, we should ALL do our best to be healthy, and everything... but Liz might want to enjoy a burden free life for a little longer -- at least, as long as she can. I mean, isn't that what we long for when we're burnt out? A bit of freedom? Choices? Splurging without going into some diabetic hell episode? Having a little more than a 1/2 cup of moderation?

Yeah, I thought so... What burnt out people want is not that different than what illness free people want. A little freedom, a little empathy, a little break, a little life.

So we should crusade long and hard for folks, because, people should not think we gave ourselves diseases, when they happen. Chronic illness is NOT easy to manage, but neither is it exactly so easy to avoid... No one consciously says "I'm going to chug donuts! I want diabetes!," and most people aren't binge eating disordered individuals... (And so what if some are... People have demons. People fight them as they can... or struggle, as they tire of their loads... Life is hard.) They are just people living... and illness IS a part of living. Illness doesn't really care if you gave it to yourself, or not. It is NOT a character flaw. It just is... It is simply... people going through the motions of LIVING... 





Saturday, January 14, 2012

She's got Diabetes, now, Y'all!

I love observing people. People are an interesting societal experiment of contrasts, paradoxes, and dichotomies. If you are a lover of the observational art of human interaction and behavior, then there are two places you probably, secretly, enjoy: the mall, and the internet.

I love the mall, because frankly, I'm visually amused. It's like TV, really. (Except, well, I still don't want to see your boxer shorts, or your g-string, so please, pull up your pants.)

The internet... is a little more complex. It's like TV, in many ways, except that you actually get to SEE the end results of people being told how to think and feel (and often, with the added boost of anonymity). And believe me, there are plenty of influential forces on the internet, just like on TV, trying to tell us how to think and feel. 

So... all of this being said, it came as no surprise to me when yesterday, everyone became the judge and jury of Paula Deen, when a rumor broke out that she would soon be announcing that she has Type 2 Diabetes, and would be signing a major endorsement deal with big pharma corporation, Novartis. Tweeterers, and folks commenting on articles, let their disgust be loudly, and well known. Even certain entities in the diabetes online community, which I will leave unnamed, immediately and openly expressed their disgust, with expressions like "Ugh!," and "Really? Ya think?," only to delete those tweets later. My fellow pals at The Blue Heel Society have been working OVERTIME just trying to put out some of the fires. 

Why are people getting so worked up? 

Well, sadly, some of the backlash from this will BE that people will use her as an example and an excuse to ridicule, bully, and belittle others, especially Type 2 Diabetics, and spread misinformation that diabetes is caused by too much consumption of sugar, butter, lard, or fried foods. There's just no getting around that. 

I do think, however, that people just love to hate Paula Deen, for the sake of hating Paula Deen. Let's look at some facts. 

1. Paula Deen is annoying as *&%#.  I can't sit through much of her show without her little terms of endearment, expressions, and actual pitch and tone of her voice, getting on my very last nerve. Frankly, she's a little annoying to look at, too. I can't really put my finger on it... but there's just something about her hair, and what she wears, and how she carries herself... She doesn't have the most razzle/dazzle personality out there. This alone makes perfect fodder for being the SCAPEGOAT to anything we can possibly hate, and what is more vilified in our current decade than apparent unhealthful eating? Am I right? 

I know, I know what you're saying...! I can read your mind. You are an HONEST, unbiased person... and you would NEVER hate someone for just what they look like, or their personality -- it's that horrible lifestyle she's promoting, and you are raising your voice loudly against it.  

Let me ask you this, then... where is your anger for Adam Richman's "Man vs. Food Nation?" I mean, come on... that show makes me PUKE. If anyone glorifies gluttony, it's Adam Richman. But, really, to everyone... He's a star. Everyone loves Adam Richman, and he can do no harm. At least Paula Deen's show was never about "how much can I eat before I bust my guts, attempting it, while I'm on vacation." (Vacation is always the excuse, by the way. Only try killing yourself with food, while on vacation.) 

Where is your anger for Sunny Anderson? Yeah, she has some healthy recipes... But so does Paula Deen! Sunny Anderson is basically, a younger, black Paula Deen, cooking Southern Soul Food. Why is she not the Queen of Evil? She obviously has a few pounds to lose, as well... 

"Oh, but Paula Deen cooks with butter, and lots of sugar, and lard...!" -- Ummm... Remind you much of Julia Child? Where's your hate for her? She's considered the QUEEN of cooking! And she also BRAGGED about  it... and a little more boisterously than Paula Deen.

Oh, wait, I know why... Because she's that annoying woman, with the southern drawl, that reminds you of your redneck aunt who always came and pinched your cheeks, and called you "dumplings." THAT'S WHY. 

2. Paula Deen endorses bad eating. Paula Deen has a very overacted, dramatic show, showcasing the southern cuisine she grew up with, just like anyone else who has a show on holiday foods and eating, is showcasing that. If you think her food is bad, then guess what, YOU'RE the one endorsing it when you watch it. In fact, when you watch almost any of the shows on the Food Network, you're endorsing bad eating, AND telling the network you want to keep watching such shows about bad eating. (Let me tell you, for all his bitching, Anthony Bourdain had NO reservations about eating that really fatty, roasted hog on a rod, the last time he visited Puerto Rico...) You can't really pick and choose which particular brand of CRAP cooking you watch is actually crap. That being said... Not any single cuisine or style of eating is going to make you obese, or make you get any disease. Hey, people say it all the time... They say "back in the 50s, you never saw many obese people..." Well, back in the 50s, people ate butter, lard, sugar covered lard butter... whatever. Understand? Food doesn't make anyone, in itself, unhealthy... It is overeating that potentially does.  Do I expect Paula Deen to be eating this type of food at home, every day, just because she has a show about it? Well, not anymore than anyone who has a show on holiday food. That would get old, and annoying fast, don't you think? And many of the recipes on her site are actually quite light, lean, and decidedly not southern. 

Also... and this might be controversial... but Paula Deen's food, for all it's caloric, sugar, and lard content is probably a LOT healthier than what America currently eats, and buys, on a daily basis. It's at least HOME MADE, and won't sit on a shelf like that burger you ate at McDonald's last night, for 6 months or more, without decomposing!  

3. Paula Deen wants to profit from her Diabetes.  Well, so far, we really don't know if she has Diabetes. She's going to make an announcement on Tuesday, and it's very likely she might admit to it. (Though, for the future, I'd like to caution any one of you against using sources like The Daily Mail, and The National Enquirer as credible sources of news.) As of yesterday, afternoon,  Novartis had told CBS that Paula Deen had not yet signed a deal with them.  

All of this being said, if she did... who cares? Why does it anger anyone if she does? Just what exactly are the inferences here? Are you inferring she's going to just use pills as an excuse to keep eating like crap, and pushing bad food? Or are you inferring needing medication as a Type 2 Diabetic is a shameful thing? Or... perhaps you are inferring that people with Diabetes who take big pharma endorsements are amoral, or have sold out? Is this, somehow, any different than Omnipod, Roche, Sanofi Aventis, etc, sponsoring some of the biggest diabetes bloggers out there, right now, paying for all their supplies, and just flying them all over the place? "Yeah, but we spread awareness..." How do you know she's not going to spread awareness? How do you know all she's going to do is ask people to consider a new drug alternative that's actually working for her? Isn't that what you do, as well? Furthermore, how do you know this is actually not a good, extra tool, people with diabetes could benefit from hearing about? How do you even know she might not turn around, and make a show showcasing how you can still eat with flare, and with passion, WHILE managing diabetes? 

4. Paula Deen knowingly hid her Diabetes, so she could keep hawking her show. How dare she! How can she sleep at night! Look, let's face it. A lot of people are a bunch of judgmental jerks. These days, everyone weighs any kind of life altering event very carefully before announcing it to the public. Even things like getting married, or getting pregnant, are career enders for many women in the spotlight. I know Paula Deen is no Beyoncé, but folks... If you loved something, with a passion, and suddenly someone gave you some drastic, dramatic, life altering news, you would need some time to think back, and re-evaluate your life. You want to regroup yourself, and your thoughts, before speaking to anyone. And have you stopped to think that she was also probably under contract with the Food Network? I'm sure she couldn't have stopped, mid season, and been like "F it! I got Diabetes now, so I can't go on..." Things like the menu, style, and theme of the show, are likely contractual stipulations. Besides... her health is really her own damn business. Not yours... and certainly not mine.  

5. Paula Deen brought this on herself. 
"There's no place for sympathy for type 2 diabetics, because factual scientific evidence has shown that it is brought on by themselves. " -- John Sampso, commenting on an MSNBC story.
And herein lies the rub of the matter. 

We, as a society, have decided Type 2 Diabetics deserve no sympathy. We have decided that Type 2 Diabetics are subhuman. Undeserving of sympathy, of support, of compassion, and worthy of our judgment, scorn, and policing. We have decided that Type 2 Diabetics, are basically, everything we hate about ourselves, or about the world's injustice toward our loved ones. How dare we lack self control, how dare we can't stay on our diet, how dare we don't lose weight, how dare we eat junk food, how dare we cook unhealthy food. How dare we EXIST. 

We can debate ourselves to the moon and back if someone's behavior contributed, or not, to their disease... (And when it comes to Paula, I honestly don't know. She is, after all, 65. Age is a huge contributing factor for Type 2 Diabetes. I don't know how long she's had it, but if she's kept it at bay until now, hell... GOOD FOR YOU, PAULA.) 

But, let me ask you this... If someone really did give themselves any disease (which I think we all know life is a little bit more complicated than that)... Does it really matter? 

Do they stop being worthy of our humanity? Or is it more... a projection of our OWN inhumanity?

Paula, honey... If you are a diabetic, WELCOME, and I am so sorry. With tears for the future journey ahead of you, I welcome you... Team Paula, all the way, baby.